Celine Dion, the renowned Canadian singer with a voice that has touched hearts worldwide, faces a unique and challenging health battle. In recent years, she has been quietly battling Stiff Person Syndrome (SPS), a rare and little-understood neurological disorder. Celine’s sister, Claudette Dion, has stepped forward to share an update on her sister’s struggles with SPS. She shed light on the challenges that Celine is currently facing.
Celine Dion’s Diagnosis
Celine Dion was diagnosed with Stiff Person Syndrome several years ago. This diagnosis was a life-altering moment for the iconic singer who, until then, had been known for her powerful and emotive performances on stage. The disorder has had a profound impact on her life. This included the cancelation of her 2023 world tour. Instead of letting her fans sit in the dark with her tour no longer happening, Celine was brave enough to tell them on her social media.
Celine started the clip facing the camera, wearing a black outfit and her hair pulled back. She looks seriously into the camera while she explains how much she misses her fans and cannot wait to get back on stage singing. Then, Celine Dion says she has something she wishes to share with the world. “You know I have always been an open book. I wasn’t ready to say anything before,” she added while nodding her head. “I’m ready now.”
Next, Celine Dion opened up about her diagnosis. “Recently I was diagnosed with an extremely rare disease called Stiff Person Syndrome. It affects something like one in a million.”
What is SPS?
Stiff Person Syndrome affects all areas of her life. It makes even the smallest task seem excruciating. “Unfortunately, this disease affects every aspect of my daily life. Sometimes it causes difficulties when I walk. And not allowing me to use my vocal cords to sing the way I’m used to.”
She added, “It’s been exceedingly challenging for me to confront these trials and openly discuss the issues I’ve been grappling with… While we’re still unraveling the mysteries of this rare condition, we now understand it as the root cause behind all the spasms I’ve been enduring.”
Celine’s sister spoke candidly in a recent interview. “We are keeping our fingers crossed in the quest to find a remedy for Celine’s distressing ailment. The spasms are uncontrollable.”
She also described what the spams feel like. “You know how people often abruptly wake up due to a leg or calf cramp? It’s somewhat akin to that, but it affects all her muscles. There’s little we can do to ease her suffering.”
Stiff Person Syndrome (SPS) is an infrequent neurological disorder that affects the muscles and causes stiffness, spasms, and muscle contractions. It is classified as an autoimmune disease, wherein the body’s immune system mistakenly attacks its neurons, leading to a range of debilitating symptoms. Moreover, SPS is so rare that it is estimated to affect only one in a million people worldwide.
How is Celine Dion Now?
Claudette confirmed that Celine Dion had not given up. In other words, she’s trying to find a solution through the top researchers of this disease. “She’s putting in every effort to regain her health,” she said. “She’s a resilient woman.”
Even though her family has remained determined that Celine Dion will get better, a source revealed some news about Celine’s true state. “Celine is in an enormous amount of pain,” a source told Radar. “She has the best medical team money can buy, but things aren’t looking good.” They added, “Her disease is incurable. And as hard she’s worked at it with doctors and therapists, she simply isn’t getting better. To be honest, she can barely move.”
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Sources
- “Celine Dion’s sister breaks silence on star’s declining health: “She is fighting”. Smooth Radio. Georgina Hamilton. July 10, 2023,
- “Startling update on Celine Dion after ‘impossible’ health battle – “there’s little we can do” Newsner. Rameeza Ahmad. September 5, 2023.
- “Celine Dion ‘Can Barely Move’ as She Deals With Incurable Stiff-person Syndrome, Unlikely to Ever Tour Again: Sources” Radar